(Updated post) Those of us who live with narcolepsy rarely feel completely awake. I live somewhere on a spectrum from “almost completely awake” to “can’t keep my eyes open.” I know that on days when I need to drive, I take my trio of chemicals – A large mug of black tea for the caffeine, […]
Last weekend was the annual Strides Against Narcolepsy Virtual Run/Walk to benefit the WUN (Wake Up Narcolepsy) Foundation. My daughter and I set off in the heat and humidity for a coffee shop just over 2 miles away, where we could fuel up with some iced tea and a snack, and then walk home. I […]
By the time I was finally diagnosed with narcolepsy, I had likely lived with the disorder for over 30 years. It was when I was in college that the difficulties began: I started having trouble getting to sleep at night, and getting up for morning classes became torture. The issue with getting to sleep at […]
Never feel Awake or Rested. Cataplexy can Occur with Laughter. Expressing emotion is risky! People misunderstand. Sleep is fragmented and non-restorative. Yawning all the time.
I’m ignoring today’s HAWMC prompt in favor of passing along some great news on the narcolepsy research front. Thanks in large part to the efforts of Julie Flygare, who headed up a campaign to submit comments about narcolepsy to the FDA, narcolepsy has been selected for the FDA Patient Focused Drug Development Initiative (PFDDI). I […]